We took Sarah to the hospital on Wednesday morning. She had to be there at 6:10. They took us in the pre-op room and I changed her into a hospital gown. We were so nervous. The nurse and doctors came and talked to us and then it was time for her to go to the operating room. Rich went with her until she fell into her magical sleep. They let her chose a flavored chap stick to rub on the mask so that it smelled nice as she breathed. She chose watermelon.
Her surgery ended up taking 8 hours. Rich and I went to a waiting room. I walked in with my mind numb and my eyes hot with tears. I wanted to hide away from the other parents. Rich and I hugged, he was crying, too. He had a hard time leaving Sarah behind and went back to kiss her one more time before he left here there so small and dear.
How did we wait 8 long hours? The time went by so slowly but as I think back on it, it is unclear in my mind how we passed the time. We sat right next to the waiting room phone and I answered it on the first ring every time the nurses called to update the parents. So we heard from the O.R. on a regular basis.
I also walked and walked, through the halls and up and down flights of stairs.
I went to the bathroom over and over…being nervous always makes my heart beat faster and my bladder want to empty more frequently.
Each time I washed my hands, I looked myself in the eyes and spoke words of affirmation to myself. “You are strong, you are so strong.” “Jesus is with you and Sarah is going to be fine.” “Everything is okay.” “Be positive.” It felt good to purposefully replace negative thinking with positive words.
I went into the Meditation room where there was a book to write your words of prayer, and Bibles to read (a Torah, 4 books of Mormon, and a Hebrew Old Testament). I prayed in there with my face in my hands. I wrote in the book the words to “Jesus Loves the Little Children.”
I sat by my husband who was working on his laptop, and colored. There was one other mom in the waiting room who also colored. It helped to keep me calm.
I watched other people.
There was hot chocolate, coffee, and graham crackers in the waiting room. I had no appetite but I forced myself to eat and drink. Rich and I ate lunch in the cafeteria. I don’t remember what I ate…….
And finally she was out of the OR. As we left to speak to the doctor one of the dads said “But who is going to answer the phone for us now?” And we laughed.
Sarah didn’t have three large kidney stones, she had about 10 smaller ones. It took the doctor several hours to remove them. They were so soft that they broke into pieces as she tried to get them out.
They did another test to see if her kidney had any abnormal areas but it was a perfectly normal kidney. We are all mystified about how she ended up with so much stone burden.
Then it was time to see Sarah and I could not wait. The nurse had me get right in bed with her. She was white and groggy, and a little weepy.
We put a cool washcloth on her forehead and helped her eat a bite of slushy which she promptly threw back up. She played a little bit on an iPad with shaky hands. After a while, the entire bed with both of us on it was wheeled down the hall, up the elevator, and into her room where she would end up spending three nights in.
I was so happy that night, the burden of anxiety of several months in anticipating this surgery was gone. I took this picture at 1 in the morning, when Sarah was wide awake watching The Poler Express.
She spent most of the day on Thursday in bed. She was in pain and had a lot of trouble getting to the bathroom. She didn’t want to move and she had no appetite. She was on an IV for fluids, antibiotics, and pain medication. That night she ran a temperature of 103. She was coughing. The euphoria of having the surgery over began to wear off a little.
By the next morning, Friday, we were both emotional messes. Rich had gone home the night before and went to work that day. I was so worried about the fever and just the whole experience in general and plus no sleep……it was so hard to stay cheerful. It broke my heart when Sarah was crying and she said, “Mama, why are you crying?” I felt like my emotions were making her feel worse.
The nurse was so wonderful. She talked to me and said that Sarah needed to get out of bed and that we would both feel better if we got out of the four walls of that room and away from bed and the idea of “sickness”. I hadn’t even thought of that because with Sarah’s pain I didn’t want her to do anything but rest…..which is not what the doctor and nurses wanted their patient doing….I stepped away for a few minutes to clear my head and compose myself. I went down to the cafeteria and ate breakfast (it was after 1o) and I sat and quietly cried as I ate. I made some coffee and took it back upstairs and found a young lady with Sarah, talking to her cheerfully. She was going to wheel Sarah down to Radiology so she could have an X-ray on her abdomen to make sure the stent was in place.
(As she was spiking a fever, she had to have several extra tests to see if she had infection; a urine test, blood test, chest X-ray, and abdomen X-ray)
She pushed Sarah in a wheelchair as I walked along not able to talk because I was still holding back tears and felt so worn out.
After the X-ray, the young lady (I cannot remember her name) took us to see the Family Resource room and that is where Sarah and I both began to cheer up and believe once again that life was worth living. 🙂
There was so much to do in the room, it was clean and bright and very kid-friendly. There was an iPod table, books, computers, and a big beautiful fish tank. Sarah got out of the wheelchair and walked around (slowly, and sort of bent over because her tummy was sore).
She perked up and began chattering just like the Sarah we know and love.
We went back to the room so she could get her next dose of medicine and Rich surprised us by walking into the room….he spent the whole rest of the day with us.
The two of us took Sarah to the cafeteria to eat lunch. She ate a whole taco and it was an absolute joy to watch her eat and say yum over her food again.
And then she did more playing!
That afternoon she also went to an art time on a different floor–her Dad took her while I went for a little walk and then colored in the 6th floor waiting room as an older lady slept in a chair next to me.
And then! Oh joy, I was able to go home to sleep that night and Rich stayed with Sarah.
I went back early on Saturday morning….I was there by 6:30. Rich had to leave to coach wrestling. Sarah had spiked another fever and at first there was talk of having her stay another night.
In the meantime, we had to leave the room again to keep our spirits up. Sarah didn’t go in a wheelchair this time, she walked on her own two feet. The nurse disconnected her from the IV and it was nice to go along without having to push around an iv pole. She insisted on pushing all the buttons for me.
Her poor hair was a rat’s nest. I hadn’t combed it because she was so grumpy in the days after surgery that I knew that she wouldn’t tolerate me messing around with her hair. But as soon as we got back to the family resource room and she was playing on the computer, I sat behind her and oh so very gently combed her hair until it was finally smooth again. It took a long time.
She strung a few beads and then got too tired.
She played with puzzles.
And the giant iPad. We were the only ones in the room.
We went back to our room to rest and the nurse came to take out her “tubes”. She asked if we were ready to leave and go home and we both smiled and said yes, we were. So discharge was underway and as soon as he could, Rich drove back to the hospital to get us.
We left with the knowledge that she would probably spike another fever that night, but we had prescriptions to fill and a phone number to call with any questions. The tests they had done to double check on infection all came back clear…urine, blood, lungs, tummy. The doctor ended up deciding that the fevers were probably from surgery itself, and bacteria going into her system from the stones being disturbed.
The sisters were reunited, we ate ice cream on the way home.
The brothers were happy to have Sarah home again. Caleb had spent some of his own Christmas money on a few little gifts for Sarah and before I knew it, she had gone all the way up the stairs to play in her room with her devoted brother.
She slept in our room that night and although she did wake up upset and confused, she didn’t spike a fever after all.
She had a sponge bath on Sunday morning and it was so good for her to get the hospital smell off and her hair washed good and clean again.
I braided her hair and when I left the room to get something, she turned to her dad and said, “I look pretty…don’t I?” Yes, you do, Sarah.
I took this picture last night when Rich and I were reading in bed.
Today has been good…she’s still moving slow but the pain is getting easier for her to deal with. I left her for an hour with Grace as I went to the store to get milk. I’ve been busy making muffins, cleaning, making tacos for lunch, more cleaning, catching up on so much laundry, all with a peace in my heart that Sarah is okay and getting better again.
She has an appointment tomorrow with urology and the surgeon as a follow up. I know she’s healing nicely but of course I want to know what the urologist says about what we can do for her to hopefully prevent her from getting kidney stones like this again.
Thank you for your prayers!
My goodness what an adventure Sarah had! And you too (I have tears in my eyes too!) I’m glad She’s home and recovering now, and hope all goes smoothly from here on in!
I cried too. What a mercy you didn’t know ahead of time how it would go; and you had strength as you needed it for each moment. So happy she is on her way to being herself again. I hope they have some good tips for you as far as diet or something to prevent it from happening again.
I had tears in my eyes, too. I’m so glad to hear this good news, and that Sarah is recovering nicely. God is so good.
Oh praise the lord!So so glad sarah is doing well,and that you made it through this time. God is so good, He never ever leaves us or forsakes us. Hugs,Christina
Oh goodness, I got teary reading this, so glad she is home now and doing better!
I too had tears… What a week you all had. So glad Sarah is HOME! We love you and thank the Lord for His gracious mercy and grace given to you in this.
Kara was praying for Sarah at dinner tonight. So sweet.
We are still getting our project for her done…we had a minor delay with fevers running in our house.
Shanda I have read your blog for so long. Before I even had kids. I have a son that was born around the same time as Sara. Thinking of going through this with him brings tears to my eyes. You are so brave, and I am so thankful you all made it through this! I was praying for her, and you. Thankful this is behind you!
Thank you so much, Cass, it was good hearing from you!
… and here’s another teary eyed reader for you! Oh my, Shanda, I can only imagine how nervous you both were in the beginning, then all through this process, and now, how equally relieved you all must be! I can understand the peace your heart must feel now as a mom, too! So happy to hear, and see, that Sarah is home and healing up nicely … rejoicing along with you! Praying for a good report from the urologist, as well. My sister was almost as young when she had this same surgery. She healed up quite well and never had a problem with stones again. I’m praying the same for your sweet Sarah! Hugs ~
I am glad all your chicks are back under your roof. Continued healing prayers.
This post had me all kinds of weepy. My mamma heart can only imagine what it was like for you those days during and after surgery. I am so happy your girl is home now and will be praying for a speedy and smooth recovery. xo -Chris
So glad to hear that the surgery went well and Sarah’s back home. That was quite an ordeal for you and your sweet Sarah.
Hi Shanda, I haven’t commented here in a while but just love stopping by to read. So glad your sweet Sarah is all better. I think hopsitals should have someone just for us Mama’s when our wee ones are in there. haha! We need that extra help and emotional support in those wee hours of the night or long hours waiting for results. It was so hard to let our son go with the Dr’s when he broke his arm at age 3. That last kiss and good-bye left me weeping. It’s hard!!
What a sweet reunion with her brothers and sister. ♥love♥
Your family is growing up so sweetly. Your oldest planning on the military. We have our 3 oldest boys in, and my handsome husband. We are so proud of them all.
I pray for you and for Sarah. God bless you . It is very hard to see your child suffering, courage, Christ is with you . beautifull little Sarah
Great hearing from you, Soline! Sarah is improving every day and has gone to school for the past two days. I’m so thankful for your prayers.
Reading your story of your hospital adventure with Sarah made me remember a few years ago when my not-quite-three year old was hospitalized for 12 days with a severe respiratory illness. Aren’t children’s hospitals amazing? They take such good care of their little patients, not only helping to make them well, but also caring for their emotional well-being through art and play. We were almost sad to leave our awesome nurses, as excited as we were to go home! I’m so glad Sarah is now home and on the mend! It’s just heartbreaking to watch your child go through these things!
Hi! and Yes, children’s hospitals are amazing. I’ll never forget after the young lady helped us to radiology and the family resource center she went right to work caring for other little children. We saw her walking the halls with a little one year old baby in her arms, she cheerfully said to me that they were going for a walk because it wasn’t good for her psyche to be in her room too much….a baby! It really impressed me. Everyone was cheerful and so patient and kind. There were interesting things for the children to see everywhere they went. ~Shanda
*Just so you know, this is the same Emily from My Beautiful Life, I just signed in through Facebook for some reason. 🙂
So glad this is over for you all. I must have missed this post earlier this week. Good to see your girl and YOU doing better! Yay!! My daughter, J, has been coloring as well. She says it relaxes her. Me -on the other hand- am not a color in the lines type of gal. But you knew that! LOL Hope you will be having a nice weekend. Did I tell you that my oldest granddaughter is living with us now? She works nearby. Rachel and her family are moving back to the area after 21 years in the inner city. I am thrilled to have her near again, but know it will be a huge transition for her husband. God has opened the doors – WIDE. Cannot argue with that. Amen? Amen. xo
So glad to hear you are through that! It’s hard to watch your child suffer! Hope Sarah continues to feel better!
Oh Shanda, I cried as I read your story. Eight hours is a long time to wait for an operation to be over on your child and then she had fevers etc. What an emotionally difficult time. I’ve been away from the blogging world for a long time so have been unaware of this until my return and checking on your blog. Big hug for you. x
Catching up on all your posts, Shanda. What a long long surgery. My heart was with you that day praying, but I too teared up reading this, and all that went on. So good to see Sarah doing well now, and through all of this! David’s surgeries have been short in comparison, but that feeling in the pit of your tummy is there throughout. Such a blessing to hear of the help from the staff, and the cheerful environment. I know we have come across some that make such a difference, and you just know they are using the talents God blessed them with.